A little update following my delightful recent stay at Derriford Hospital - sorry if you've seen some of this elsewhere...
Ok, so the physical operation went well, with the neuro team able to remove a large amount of the tumour, mainly because I was wide awake and chatting about Barcelona's midfield with the anaesthetist while he was working - don't ask.
As a result, I have got about 80% strength and movement in my left ankle and it's going to be pretty much back to normal soon. Go me. Unfortunately, that's all the good news.
As previously suspected, my tumour is, in the main, a type 2 glioma - a slower-growing variety. However, some areas of my tumour that have now been reclassified as grade 4. This means that there are small areas of what remains which are aggressive. Eventually though, all areas will become grade 4.
What does this mean? Well, it means that I am going to undergo combined radiotherapy and chemotherapy next. And that I am really quite annoyed.
My prognosis depends on numerous things - mainly, how well I take treatment, and how poorly the cancer responds.
There are several factors in my favour: lots of the bastard was removed; I am young enough and healthy enough to fight it for some time, and it is mainly a type 2, which means it is lazier than it could be.
Given all this, it is fair to assume that I have three to five years left, assuming I am healthy, lucky, and my cancer doesn't fancy it all that much. It goes without saying that I wanted longer, but the fact is that five years is my best-case outcome from here.
Given all this, it is fair to assume that I have three to five years left, assuming I am healthy, lucky, and my cancer doesn't fancy it all that much. It goes without saying that I wanted longer, but the fact is that five years is my best-case outcome from here.
I have not yet fully researched alternative treatments available outside the NHS/overseas but am in the fortunate position to potentially explore my options - if you or anyone you know has credible intel on efficacy for freezing/proton beam treatment etc for people in my position, I am all ears. Diet-wise wise I am doing what I can. I have a feeling that my proposed treatment is the best I can currently hope for but I will take advice from all corners at this point.
Regardless, I will only get to five years from here with a combination of my own renowned stubbornness and the support of my beautiful wife, my family, my imminently arriving son and you lot - my fabulous friends. On a dark day, I’m so glad I have you all around to pick me up when I need you. God speed, you rock'n'rollers.
Right - enough of this wallowing - I am still cross and only getting crosser. We only go forwards around here, and I am not fucking dead yet. If ever there was a time to watch Star Trek II: The Wrath of Khan for a bit of early-doors inspiration, that time is now.
Love love love xxx
Love love love xxx